Kellee’s Engaged!

March 20, 2011

1/25/11 – Kellee got engaged in Cambodia, it is quite a story and it is a story of how God in his mysterious ways uses circumstances to His glory while blessing those who love and serve Him. The entire story would be a book, but this post will only hit the highlights and not cover all the details, it goes like this…

On March 11, 2010 when we first learned about Kellee’s brain tumor, The Bridge in Ottumwa, IA, (the church where Kellee leads worship) had a team on a mission trip in Cambodia. When word of the tumor reached the team while in Cambodia, one of the missionaries living and working in Cambodia was a young lady named Molly H. It turns out Molly and Kellee knew actually each other. They first met at Bible camp when they were 12 years old and both were at Central College in Pella as college freshmen. Molly left Central after a semester and landed as a missionary with YWAM (Youth With A Mission) in Cambodia. http://www.ywam.org/

So, when Molly learned about Kellee’s health challenge, she was able to contact him through the magic of modern technology and electronic communication. (Molly is the “special friend” mentioned in earlier posts on this blog.) Molly was back in Iowa in April of 2010 and Kellee and Molly went out for lunch. Then in the summer of 2010, (August-September) Molly was in Iowa again. Kellee and Molly spent quite a bit of time together where they talked and dreamt about the future. When Molly went back to Cambodia, she and Kellee continued to “date” via Skype, facebook and emails. Kellee made plans to go with The Bridge to Cambodia on the next mission trip in January of 2011. As things progresses in their dates, he made arrangements to take along a ring and ask Molly to marry him. That is exactly what he did on January 25 in Cambodia. They called home to Iowa and Skyped with their parents to share the news. The date they picked of the wedding is June 11, 2011. June 11 happens to be the date of Kellee’s parents wedding as well. Isn’t that just like God to use something like cancer to bring two of his children together? God loves to surprise us and bring the good out of the not so good and how He worked in this situation is awesome!

Engagement Announcement via Skype

Parent Heart Issues

March 13, 2011

This post will share a bit about one of the Brain Tumor Parent’s health issues. Kent has been on medication for heart issues since high school. A heart murmur was discovered during a football physical. Life was pretty normal until the late 90′s when atrial fibrillation started to become an issue. Each time the heart went out of rhythm, a cardioversion was needed to get the heart beating normally. After about eight times of the heart going out to rhythm, the issue was brought under control with the medicine called Amiodarone , using a dose of 200 mg a day. March 2001 was the last time Kent’s heart went out of rhythm. After being on the medicine for so long, Kent’s doctor began to get concerned with the toxicity and the long-term side effects of using Amiodarone. Periodic blood work showed hypothyroidism developing and Synthroid was prescribed. Corneal micro-deposits have also been seen in yearly eye exams. So far the potential side effects to the lung and liver have not appeared. However in the fall of 2010 Kent’s doctor attended a conference where the long-term use of Amiodarone was discussed. He recommended Kent see a cardiac electrophysiologist to see what other options might be available. On November 2, Kent saw Dr. H. in Des Moines. The doctor went over the use of amiodarone and explained how it was never intended for long-term us by a patient as young as Kent. Plus a new side effect had recently be identified that was concerning, lung cancer. Dr. H. recommended a plan of reducing the dosage to 100 mg a day and see what happens. If the heart remains in rhythm at that dosage, the possibility of side effects are greatly decreased and could wait another 5 years and who knows what other new technologies would be developed. On November 5, 2010 the dosage was reduced to 100 mg a day.

Every thing went along just fine until the night of January 17 while brushing teeth getting ready for bed, Kent’s heart went out of rhythm. So a trip to the ER in Pella was in store. Before we went tot he the ER Kellee prayed of Kent in the kitchen and even (briefly) mentioned maybe he wouldn’t go on his scheduled trip to Cambodia which he was to depart the next day the 18th. At the hospital the decision was made to stay overnight and then cardiovert in the morning. Which is what was done, the heart was put back in rhythm and Kent was sent home to rest with the dosage of Amiodarone bumped back up to 200 mg. Kent contacted Dr. H’s office to report what happened and a cardio ablation was scheduled for April 7, 2011. The actual procedure will be a cryoblation, the procedure bacially defined goes as follows – a catheter is a very thin tube that is inserted in an artery in the patient’s leg and threaded to the heart where it delivers energy to treat the patient’s arrhythmia. In surgical procedures, a flexible probe is used directly on an exposed heart to apply the energy that interrupts the arrhythmia. By cooling the tip of a cryoablation catheter  or probe  to sub-zero temperatures, the cells in the heart responsible for conducting the arrhythmia are altered so that they no longer conduct electrical impulses.  We will keep you posted as to how it goes.

2010 in review

January 11, 2011

The stats helper monkeys at WordPress.com mulled over how this blog did in 2010, and here’s a high level summary of its overall blog health:

Healthy blog!

The Blog-Health-o-Meter™ reads This blog is on fire!.

Crunchy numbers

Featured image

A Boeing 747-400 passenger jet can hold 416 passengers. This blog was viewed about 7,500 times in 2010. That’s about 18 full 747s.

In 2010, there were 102 new posts, not bad for the first year! There were 109 pictures uploaded, taking up a total of 8mb. That’s about 2 pictures per week.

The busiest day of the year was April 9th with 189 views. The most popular post that day was Going back to Iowa City.

Where did they come from?

The top referring sites in 2010 were facebook.com, google.com, mail.live.com, schuringfamily.blogspot.com, and mail.yahoo.com.

Some visitors came searching, mostly for braintumorparent.wordpress.com, site:braintumorparent.wordpress.com braintumorparent.wordpress.com, kellee van hemert brain tumor blog, www.braintumorparent.wordpress.com, and couples banquet.

Attractions in 2010

These are the posts and pages that got the most views in 2010.

1

Going back to Iowa City April 2010
2 comments

2

Brain Tumor, you’ve got to be kidding me!?! March 2010

3

What are you doing the next 10 years? Plus an Amercian Airlines update. May 2010

4

So it begins… April 2010
1 comment

5

VEISHEA Botb April 2010

3 Month Follow-Up MRI and Ophthalmologist Visit

October 21, 2010

Thursday, October 21, 2010 – Today Heidi and I went along with Kellee to the first of the 3 month follow-up MRI’s. Originally it was scheduled for  earlier in October, but due to a scheduling mix up it was switched to today. We wanted to have the MRI and eye doctor visit on the same day to reduce the number of trips to Iowa City. We were up at 4:30 to get ready to leave by 5:30 am to get to the Imaging Department in time for a 7:00 MRI appointment. We had considered contacting The Hope Lodge to stay there overnight and not have to get up so early. (The Hope Lodge offers this service to alumni, provided rooms are available.) We decided not to do that because then we would have had to go up late last night since both Heidi & I have activities on Wednesday nights at TRC. We were in the van and about ready to when Kellee realized he forgot his cell phone, at the last-minute he decided to run in a get it. We were about 1o minutes in the drive when his phone rang. It was a call from Cambodia! Kellee spent the next 40+ minutes talking with his “special friend” who is living and working in Cambodia with YWAM. Kellee was so glad he had retrieved his phone!

We were supposed check in @ 6:50 but didn’t quite make it, but the MRI went fine, Kellee said he didn’t even feel the injection when he was given the contrast. (Remember he doesn’t like needles!) After the MRI there was a meeting with Dr. S. the Radiation Oncologist. Kellee had to call on  a “Pre-Access” phone to change his insurance, so while he was doing that, I copied a recipe for some Lentil soup that looked good from one of the magazines in the waiting room. When we got called into the exam room, we had to wait a while before the doc showed up. While he was waiting, one of us said, I hope it is not taking a while because he saw something on the MRI. Fortunately when he came in, he said he hadn’t even looked at it yet and we would look at it together. When he pulled it up, it was clear! Still no sign of a tumor or any residual scarring! GREAT NEWS! The next MRI should be in the end of January, but it might have to be pushed to February because Kellee is planning to go to Cambodia in January. After the next MRI, Dr. S. said Kellee could go four months between MRI’s. Doc said he fully expects all of them to be clear.

After the appointment we went to the Coralville mall  and then to Pita Pit for lunch since we had time to kill until a 1:15pm appointment with the ophthalmologist to see if Kellee’s double vision had improved at all. He went through some tests and then we all met with Dr. L. told us Kellee’s double vision had improved slightly. Kellee’s double visions is both a little off vertically and horizontally. The doctor told us in adults the brain can typically correct horizontal (side to side) double vision but not vertical, but he said his double vision by test measurements and his observations of eye movement appears to almost back to normal and he suggested taking the prism off. He said future surgery is off the table and not needed. Kellee was not sure he wanted to go without the prism. The doctor then suggested a different prism that is slightly less corrective for his glasses. The doctor also provided a new glasses prescription for his glasses since the current glasses Kellee wears are a bit old and he really should update his prescription. Kellee will see this eye dr again in 6 months. Kellee told us that during the appointment with the eye doctor and being U of I is a teaching hospital, there were 4 others with him and he asked Kellee to give a history of his medical condition. Kellee told them about the tumor, then radiation and now at this follow-up there was no evidence there ever was a tumor. One of the people with the eye doctor said, “I don’t believe it, there is always some residual evidence a tumor was there, scar tissue or something.” Kellee said no really, no evidence. They decided to pull up the MRI on the computer in the exam room. After looking at the MRI for a bit, the guy said, “Well, by golly, I guess you are right, there is no evidence.”

We are so grateful for where Kellee is right now, truly prayers have been answered!

A Job!

October 11, 2010

Kellee now has a full-time job in the Contact Center at Pella Corporation.  He started on September 27 and is currently in the midst of a month-long training program. He is learning all about Pella products, etc so he will be able to talk to and help customers. He is excited to get a job and have a steady income to help pay off his medical bills! This is truly an answer to prayer. additionally more prayer has been answered in that one of his side effects of the radiation therapy stopped right before he started his job.

Kellee also thinks his double-vision might be improving and is looking forward to finding out when he goes back to Iowa City later in October. We are praying the double vision will improve.

A New Prayer Request

September 19, 2010

For the last 2-3 weeks Kellee has been experiencing some stomach and intestinal issues. For a while we were thinking it was just some kind of a bug, but it has been going on for too long now. He had been trying to manage it with what he eats and some anti-diarrheal meds. It has been going on long enough now that he will be calling the doctor tomorrow to get it checked out. Please pray the doctor can figure out the issue and it is easily treated or it is just a side effect from radiation that he just has to get through and it is not a sign of anything else.

Kellee’s hair is growing back in!

September 2, 2010

Kellee is very excited his hair is growing back in. It actually started to grow back a few weeks ago and he stopped wearing his hats. (Another reason he stopped wearing the hats is someone told him she liked how he looked without a hat, hmm. But that is another story. )  His are is now nearly to the point where you can no longer see any evidence of the biopsy. So far it is hard to tell if the hair will be any different from before the radiation therapy, if anything his hair may be a little bit darker.  Now he is just working through the last few of the radiation side effects and getting stronger and he will be back to normal.

Two Payment Options

August 20, 2010

Kellee maxed out his out-of-pocket expense of his insurance and he contacted the U of I hospitals to arrange payment, Turns out they have two payment plan options s to choose from to pay off his portion of the bill. Option #1: Payment in full. Option #2: 12 months to pay it off. Nice to know they are flexible! Kellee has been applying for jobs around town to try get some money to pay off his bill. So a prayer request would be to pray for a job!

Kent takes some Zofran

August 20, 2010

Our Apologies for the delay in posting anything new, we’ve been busy lately but over the next few days I will try to catch up with a few new posts. Monday – July 19, 2010 - This post is way off the topic of the normal subject matter of Brain Tumor Parent, but since it involved one of Kellee’s parents, there was an executive decision made (by me) to include this anyway. I am sure many of you have heard about a certain procedure which the medical community strongly suggests people who hit the age of 50 have to check a particular area of anatomy for abnormalities. In other words, the dreaded colonoscopy! Having hit that milestone in the year of our Lord 2009, Kent was due for such a procedure. By the time I had my yearly physical in 2009, my doctor recommended I schedule one soon. However, at this time our flex spending money was gone and I elected to wait until the following year. The doctor allowed me to wait only if I took a home a test which involved throwing pieces of paper into the stool after a BM and seeing if they changed colors. There were colors you wanted to see and others you didn’t.  I passed this test with flying colors! Fast forward about 8 months, I was in the office of my other doctor, (yes I have a whole cadre of doctors) and he asked me if I have yet to have a colonoscopy. When I answered no, and told him why and that I had been told I would need a physical before I could have one scheduled, he asked me if I wanted the visit on that day to count as a physical, he would only have to do a couple more tests and order an EKG and it would qualify. I agreed, since earlier on the same day I had been talking to a co-worker who had a family member with colon cancer who just had surgery to remove the colon. So it was on my mind. The procedure was scheduled for Monday 7/19/10 so I wouldn’t have to miss work on the prep day (A recommendation from another co-worker). Later the next week I received a some instructions explaining the prep and procedure and a prescription in the mail for the clean-out juice officially called Movi-Prep. As the day approached, having shared with some co-workers what lay ahead in my schedule I was dreading the day more and more and mostly because of the horror stories I had heard about the pre-colonoscopy preparations then the procedure itself.  Sunday the 18th was prep day, the instructions said not to eat anything I had to chew that day and to start drinking the explosive cocktail later in the afternoon.  Turns out this Sunday was the day my mother-in-law decided to have our family over to celebrate my birthday. While the family feasted on ribs and all the trimmings I ate applesauce and pudding, Happy Birthday to me!

The go juice was powder to be mixed with water; one packet to be used for the day before and another for the morning of the procedure. 8 ounces of the mixture is to be consumed every 15 minutes until it is gone; results usually begin within one hour. (I think the last time I drank a number of ounces of a liquid every 15 minutes was back in college but that is a different story.) Here is where the wonder of modern medicine really comes into play, how they can make something that will move through a body so quickly is beyond me. Eat and drink normally and a person can reasonably go hours, if not days, without having to make a trip to the water closet. Not so when you take Movi-prep! The liquid becomes a tsunami on the inside and pushes everything out to sea, so to speak. The timing was pretty close and that is all I have to say about that. I had to get up at 4:00 the next morning to start it all over again.

I was instructed to report to the front door of the hospital 1 hour before the procedure. Heidi dropped me off on her way to work; she was driving the Metro because Kellee was using the Honda van on a trip to visit a friend in Cedar Falls. The white van he normally drives was in shop getting the AC fixed, more on this later. While checking in at the hospital I expected they would want to see and most likely take a copy of my insurance card, it seems like the ask for that each time you visit the doctor. Nope, didn’t ask for that, they asked for my driver’s license so they could take a copy of it. I hesitated, that seemed strange and I asked why they needed it. “To prevent identity theft” I was told. I replied “so you asking a copy of my license and placing my information in another location will prevent identity theft?” She told me this will help prevent someone from getting medical services using my name. I thought; “shoot if someone wants to be a stand in for me in this procedure steal my identity away!” But I didn’t say that, “Are you uncomfortable with me copying your license sir, if so I don’t need to take a copy?” “Good” I said. After check-in, I think it was me they brought to a waiting room.  There was one other victim, I mean patient in the waiting room for the same procedure. I was shown to a staging room and told to strip and put on a fashionable dressing gown; however I could leave my socks on. I guess they don’t like to look at feet! An IV was started, blood was drawn and they went over the list of all the possible things that could possibly happen as a result of the procedure, including death. I wasn’t worried; I had survived the prep when I felt like I was dying for the inside out. I was also told I would be given a drug that would make me forget and for that reason when the procedure was done I needed to have someone drive me home. I gave them Heidi’s number to call so she would come and get me.  Soon the doctor came in to tell me I was second in line and to ask if I had any questions. The only question I asked was how many of these he had performed, he said he did about 500/year. Wow, I can’t even imagine, but it was good to know he was experienced. About 25 minutes later they wheeled me into the room where I saw they had about 1350 feet of tubing laying on a the table, I nearly passed out! They turned me on my side, talked to me some and the next I knew I was back in my room and they were asking me how I felt. I really don’t remember much, I know the doctor came in and told me they found nothing there so I was good for 10 years, yeah! I don’t remember putting my clothes back on, but when Heidi came and got me I was fully dressed. On the way home Heidi said I told her the details I remembered at least 2 times, the wonderful effects of the forgetful drug. Heidi dropped me off at home and plopped into the recliner. There I rested/slept for a couple of hours. Later in the day, the phone rang and it was the shop saying the white van was fixed, AC worked and was ready to be picked up. I thought, now would be a good time to call Kellee, tell him about the van and give him a report about my procedure. When I called him and told him about the van having AC, he was excited. No more hot summer treks to Ottumwa to lead worship at The Bridge. Then I told him my procedure went fine and they found nothing and I was good for ten years. He replied, yes dad, you called me this morning to tell me that. Man those were good drugs; I didn’t remember I had called him. So right here and now I apologize to anyone who may have received n incoherent phone call from me on July 19, 2010. I took it easy the rest of the day in between trips to the restroom.

(I am finally getting to the Zofran part now), in the evening Kory, Heidi and I were watching “As Time Goes By” and I started to feel real cold, and nauseous and soon I got the shakes so bad I could not control them. We took my temperature and it was under 100° but I felt so cold, I could not stop shaking. My body hurt from all the shaking. Heidi called into the ER and told them what was going on, they said to keep an eye on my temp and if it climbed above 101° to come into the ER. Late my temp was nearly 103° so into the ER we went. I was placed under a warm blanket given some fluids and, wait for it, Zofran for the nausea. After about 2 hours I was sent home. The doctor thought I probably had a virus that just happened to hit me and it might not have been related to the colonoscopy at all.  I stayed home from work the next day to get fully recovered.

The colonoscopy experience is not so bad, but I am glad I can wait 10 years before I go back!

What If…?

July 21, 2010

Sunday, July 18, 2010 – Son’s & Heirs, the band consisting of Kellee, Kerry, Matt T. & Phil D. were the worship band at the 10:30 service in the auditorium at TRC. After the songs at the beginning of the service and shortly after Mike R. began the message, he had Kellee come up and interviewed him about his experience and how prayer played a part in his journey. If you want to listen to what Kellee had to say; copy and paste this address into your web browser;  http://www.trcpella.com/pages/page.asp?page_id=12267  or click on the link below. Find the “What if…” series and click on “View Series” to see all the messages in the series. The message to listen to is titled “What if…prayer really worked.”

http://www.trcpella.com/pages/page.asp?page_id=12267


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